Update 2023
I thought it was probably time for another update. This post is partly just to let everyone know I’m still around, but also to remind myself that things have improved after everything last year.
Tag: Duchenne Muscular Dystrophy
On-Screen Joystick
This is an On-Screen Joystick for Windows. Created to allow me to play cloud games from Gamepass without connecting a physical joystick
A Mixed Couple of Weeks
It’s been a mixed couple of weeks for me, last week I was very busy so I really wanted to relax and enjoy the sunshine this week, I managed for the most part with a few hiccups along the way.
One of those weeks – Anxiety
Well little things have been building up this year and last night really kicked off my anxiety
Requiem – It’s an extras life for me
Most of this post was written last year (2017) shortly after filming my scenes for Requiem but hasn’t been posted until today due to my non-disclosure agreement. I appear as Kendrick’s son in episodes four and six. There may be spoilers ahead! (I have tried to keep them to a minimum though) The Offer A Read more about Requiem – It’s an extras life for me[…]
Mental Health Awareness
The reason I’m writing this now is twofold, firstly after giving my last mental health workshop I suddenly realised I hadn’t once been asked about my mental health during my recent hospital stay, and secondly a talk at the Action Duchenne International Conference I attended at the weekend. I have been working with a group Read more about Mental Health Awareness[…]
So Where Am I Now?
So Where Am I Now? I’m back at home and spent all of yesterday playing Wolfenstein: The Old Blood with my cousin on my brand new 55 inch TV, and today I intend to take the dogs on a short walk. Although I can’t manage too long in my wheelchair it’s still a long way from being in a hospital bed, so swollen I could barely move, with four drips attached to canulas in both my ankles!
Light at the end of the tunnel
After the drama of the first few days in hospital things did slowly improve, there was still the constant worry I’d have another angioedema episode, or that they would need to cut the open, but there was light at the end of the tunnel and I was starting to think I would really get home soon.